Cystic Fibrosis Awareness Month
Slappa’s Thongs & Cystic Fibrosis
Cystic Fibrosis (CF) is a cause very close to our hearts and this month we are proud to be joining the #CFArmy to help spread awareness of CF by donating $5 from every pair of White, Red and Orange Slappa’s
What Is Cystic Fibrosis?
Cystic fibrosis (CF) is the most common inherited disease affecting the developed world, with one in every 2,500 children affected. It is a multi-organ disease, affecting the lungs, gut, liver, pancreas and reproductive tissues. At present, about half of those with CF will die by their late 30s from lung disease. Lung disease is the cause of death in over 90% of CF patients.
Every person has two copies of the CFTR gene, one inherited from the mother and one from the father. For a person to have CF, there has to be a mutation in both copies of the CFTR gene. Scientists have found more than 1,700 different mutations in the CFTR gene that can cause Cystic Fibrosis.
Is There A Cure?
With CF, the major contributor to worsening health and early death is lung disease. CF results in the ongoing loss of lung function due to repeated airway infection and lung tissue damage. No cure is available.
Orkambi® (Lumacaftor and Ivacaftor) is a combination therapy that was PBS approved late last year but it can’t be used by all CF sufferers and unfortunately these treatments are very short lived and can only slow the lung’s destruction.
CF patients require extensive daily physio regimes as well as a multitude of tablets to help them lead a “normal’ life. Many CF sufferers require extensive hospital stays to fight off bacterial infections and are not always successful.
Who are Cure4CF?
Cure4 Cystic Fibrosis raises funds for world-leading research through inspiring engagement and genuine
We are closer to a cure than ever before, but until the day comes when no lives are lost to this disease, Cure4CF vow to remain steadfast in their pursuit. They share stories of
Every four days a child is born with Cystic Fibrosis (CF). From
This is something Katherine and Chris know only too well. Read their full story here.
In his short life, their six-year-old son James has been admitted to hospital 17 times, with each admission lasting around 14 days. That’s 238 days spent in a hospital room away from his friends and family, his school and the things he treasures most. He’s missed out on so many special moments over the years.
How Can You Help?
Together, and only together, are we able to take the action necessary to pursue a future free of this disease.
Here are some of the ways you can help join the fight against Cystic Fibrosis:
You can also help us to help them by purchasing a pair of White, Red or Orange Slappa’s this May. Proceeds from our Aqua Waterproof Beach Bags are donated year round.
The Slappas Team